Neil arrived home at 7 p.m. tonight...Friday. He is resting comfortably in his own chair in his "cave". He will later go to bed in his own Craftmatic bed with the massager. Later tonight oxygen will arrive since they did a sleep test and found that he really does have sleep apnea which his sister proclaimed 5 years ago while sitting with their mother at the hospital. He will at a later date have a sleep test.
Everything seems to happen at night. Last night his bed wouldn't go up and down so a new bed was brought in. The night before it was once again the leaking colonoscopy bag. No one really seems to do it right, even the wound care nurses. Kathy, could you fly in to Florida to give us guidance...I know you can't!! Another wound care nurse tried today so we'll see if she has it right. It's suppose to last at least 4 days and then it's my turn. I guess we don't have a visiting nurse any more as she was only for guidance on that. Dean is here now and will leave on the weekend with Ellen arriving for a day or so. Look out on Tuesday as I may be calling everyone I know.
Thanks so much to everyone for all your prayers, guidance, love, support, kindnesses, etc. I don't think Neil realized how much everyone cares about him until now. The money from the blog, if anyone clicks on those advertisements will eventually go to Hunters Creek Relay for Life. I've only read bits of the blog...don't really understand it yet...but it's meant a lot to Neil and especially to our kids as they've learned more about their dad. We've done a lot of bonding and reminiscing through all of this.
Now to get the house organized with easy access for everything.
Love, Kay, Neil, Ellen, Dean and Shelaine
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